Today was my post-op follow up with Dr. Falcone. Who, might I mention is awesome. He has good bedside manner and is amazing at his job.
But anyway. Turns out I for sure don’t have endometriosis, as he thought and told my husband after my surgery. I do however have a rare weird disease. Because of course I do. On the plus side, I will state right now, it isn’t fatal and it isn’t cancer, so don’t start worrying about me.
It turns out he removed tissue from my left and right pelvic sidewall, as well as my bladder peritoneum. After sending it to pathology it turns out I have papillary serous cystadenoma with borderline malignancy. Otherwise known as borerline tumors of the abdomen. The weird part is that instead of being on my ovary, which is it’s normal presentation, it was underneath my ovaries in my pelvis and bladder. If you try to look up information about it, you even get information about the ovarian form, as that’s how it presents.
So hoorah for being a weirdo I guess?
What does all of this mean? Not much. I have to go see an oncologist and get an all clear from them before I can start another round of IVF. Right now I have that appointment scheduled for next month. It also means I will have to occasionally go to the oncologist to have them keep an eye on it, as it will most likely grow back.
All in all it was ALOT more information then I thought I would get, and overall I’m happy to at least have an answer to something about my health, and a plan for managing it going forward.